More from Pat as we continue to follow her journey through the everyday challenges of living with…multiple myeloma and amyloidosis.
Received the following last thursday.
It’s now after 1 a.m.. The steroids make it hard to sleep. It’s not like I’m bouncing off the walls. I feel tired, but I just can’t fall asleep. Brad’s snoring doesn’t help. Since Aiden left for college, I can use his bed if I get desperate.
Yesterday was the first day of my second 4-week treatment cycle. Fortunately, it went just fine…like the previous cycle of treatments.
There were a lot of patients again today. I’m getting use to it.
I took the last available seat when my name was called. Sitting next to me was the woman I saw during a previous appointment who was just beginning her treatment. Her daughter was with her again. They both smiled at me. I didn’t recognize them at the time, but now that I think about it…that’s who they were.
Unlike previously, I did not feel guilty about doing better than others. I realized we all cope in our own way.
Those with seemingly lengthy treatments have family popping in now and then to ensure all is well. Some are talking on their cell phones. Some are preoccupied with their IPads or laptops. And some are enjoying their snacks…as if they were at home in their favorite recliner. I had to smile at one guy who was out like a light…”sawing some serious wood.” As for me, I was able to write some overdue thank you notes. Now I just have to remember to mail them tomorrow. [hugmamma here: Pat remembered. Her thank-you note to my husband and me read…
Thank you for the Valentine’s Day gifts.
I really enjoyed the movie MALEFICENT! And Ethan hasn’t found the chocolates yet.
Thank you also for your continued love and support. Those quick text messages are a great comfort. And the emails and blog keep me in the right frame of mine.
I miss you guys and can’t wait until we can visit in person.
[hugmamma here:These words brought tears to my eyes and a lump to my throat. Lucky for me, I married her brother…and gained…a loving…lovely…younger sister.]
I was with three other patients towards a back corner of the room. We were all facing one another and it seemed as though we were in our own separate sitting area. I thought “Wouldn’t it be fun if we were all chatting gaily while having mani-pedis???” Hmmm…I wonder if the Oncology Department has a suggestion box?
Before going in for my treatment, Brad and I went to visit his parents. I think it helped for them to see me looking like my old self. When they offered lunch, I was so hungry I said “YES, PLEASE!!!”
Evidently I’d not had enough, because after my treatment I went to Costco’s food court while Brad was in Home Depot. I felt no guilt as I enjoyed a mocha freeze. I need the calories!
Took my home meds. Much easier with regular pills that dissolve more readily than the gel-coated capsules. Still tastes yucky though!
Over the weekend I had started a food journal as the dietitian I’m seeing had suggested. It made me aware of what I was eating which is something I want to continue. Journaling also ensured I ate…AND made smarter choices. At least I think I did. What I’m not certain about is if I ate enough. I emailed the information to the dietitian, so I’ll see what she says.
Browsed through my cancer-fighting cookbook and made a shopping list. Looking forward to trying the recipes.They sound pretty good and I think my family would enjoy them as well. Most of them contain ingredients which I already have or which I readily recognize. I’m sure I can find what I need at Whole Foods or in the organics/health foods sections of our local grocery stores. I must confess to only recently discovering these aisles. Imagine how shocked my shopping cart was…as it rolled warily through uncharted territory!
Looking forward to the weekend. Have a Reiki session with Mica on Sunday morning. And the State Soccer Tournament is also this weekend. Aiden’s high school team, MPI, is the number one seed for Division II.
That’s it for another “new normal” day. I’m going to try and get some sleep so I’m not dragging tomorrow. I’ve got a lot of healthy shopping to do!
Love you always…[and your family].
…and hugs to all who continue to offer…love and support.
I think, Hugmamma, that Pat is benefiting from two senses that she has and makes use of: commom sense and a sense of humor. 🙂
Pat has loads of both…