living her best life…#32: second cycle of treatment

More from Pat as we continue to follow her journey through the everyday challenges of living with…multiple myeloma and amyloidosis.

Received the following last thursday.

Hi [hugmamma]…

It’s now after 1 a.m.. The steroids make it hard to sleep. It’s not like I’m bouncing off the walls. I feel tired, but I just can’t fall asleep. Brad’s snoring doesn’t help. Since Aiden left for college, I can use his bed if I get desperate.

Yesterday was the first day of my second 4-week treatment cycle. Fortunately, it went just fine…like the previous cycle of treatments.

There were a lot of patients again today. I’m getting use to it.

I took the last available seat when my name was called. Sitting next to me was the woman I saw during a previous appointment who was just beginning her treatment. Her daughter was with her again. They both smiled at me. I didn’t recognize them at the time, but now that I think about it…that’s who they were.

Unlike previously, I did not feel guilty about doing better than others. I realized we all cope in our own way.

Those with seemingly lengthy treatments have family popping in now and then to ensure all is well. Some are talking on their cell phones. Some are preoccupied with their IPads or laptops. And some are enjoying their snacks…as if they were at home in their favorite recliner. I had to smile at one guy who was out like a light…”sawing some serious wood.” As for me, I was able to write some overdue thank you notes. Now I just have to remember to mail them tomorrow. [hugmamma here: Pat remembered. Her thank-you note to my husband and me read…

Thank you for the Valentine’s Day gifts.

I really enjoyed the movie MALEFICENT! And Ethan hasn’t found the chocolates yet.

Thank you also for your continued love and support. Those quick text messages are a great comfort. And the emails and blog keep me in the right frame of mine.

I miss you guys and can’t wait until we can visit in person.

Love always…Pat.

[hugmamma here:These words brought tears to my eyes and a lump to my throat. Lucky for me, I married her brother…and gained…a loving…lovely…younger sister.]

I was with three other patients towards a back corner of the room. We were all facing one another and it seemed as though we were in our own separate sitting area. I thought “Wouldn’t it be fun if we were all chatting gaily while having mani-pedis???” Hmmm…I wonder if the Oncology Department has a suggestion box?

Before going in for my treatment, Brad and I went to visit his parents. I think it helped for them to see me looking like my old self. When they offered lunch, I was so hungry I said “YES, PLEASE!!!”

Evidently I’d not had enough, because after my treatment I went to Costco’s food court while Brad was in Home Depot. I felt no guilt as I enjoyed a mocha freeze. I need the calories!

Took my home meds. Much easier with regular pills that dissolve more readily than the gel-coated capsules. Still tastes yucky though!

Over the weekend I had started a food journal as the dietitian I’m seeing had suggested. It made me aware of what I was eating which is something I want to continue. Journaling also ensured I ate…AND made smarter choices. At least I think I did. What I’m not certain about is if I ate enough. I emailed the information to the dietitian, so I’ll see what she says.

Browsed through my cancer-fighting cookbook and made a shopping list. Looking forward to trying the recipes.They sound pretty good and I think my family would enjoy them as well. Most of them contain ingredients which I already have or which I readily recognize. I’m sure I can find what I need at Whole Foods or in the organics/health foods sections of our local grocery stores. I must confess to only recently discovering these aisles. Imagine how shocked my shopping cart was…as it rolled warily through uncharted territory!

Looking forward to the weekend. Have a Reiki session with Mica on Sunday morning. And the State Soccer Tournament is also this weekend. Aiden’s high school team, MPI, is the number one seed for Division II.

That’s it for another “new normal” day. I’m going to try and get some sleep so I’m not dragging tomorrow. I’ve got a lot of healthy shopping to do!

Love you always…[and your family].

…and hugs to all who continue to offer…love and support.

…pat………and hugmamma.

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nurturing thursdays: i am taking care of you…as shared by pat

For those of you not yet familiar with my current undertaking, I am penning the journey of a dear friend and relative, Pat, as she wends her way through a thorny maze on her way to living her best life. 

You might say that Pat is awaiting her Prince Charming. He who will kiss her lips thereby restoring her to the life she knew before Maleficent cast an evil spell upon the unsuspecting Princess.

In real life, Pat is suffering not one but two, rare diseases which are no match for a hunky Prince Charming, let alone a lightweight like Princess Pat. Hunkering down within her, for the long haul, are Multiple Myeloma and Amyloidosis. Both involve an overproduction of amyloid protein cells which are deposited into organs with potentially devastating consequences. 

Pat is undergoing chemotherapy for MM and is contemplating a stem cell transplant at The Mayo Clinic some time in the future. As for AL, she will have to manage its symptoms with whatever resources are available to her. Besides a medical doctor, Pat is seeing a naturopath, an accupuncturist, and a massage therapist. With the approval of her physician she has taken a supplement to reduce the swelling to her tongue. That symptom alone has caused her to lose 20 pounds because she is unable to chew her food. Juices are about all she can manage these days.

Following is a passage from JESUS CALLING by Sarah Young which was sent to Pat by niece Kelli, one of many who are showering our dear relative with loving care and concern. 

I AM TAKING CARE OF YOU.

Feel the warmth and security of being enveloped in My loving Presence. Every detail of your life is under My control. Moreover, everything fits into a pattern for good, to those who love Me and are called according to My design and purpose.

Because the world is in an abnormal, fallen condition, people tend to think that chance governs the universe. Events may seem to occur randomly, with little or no meaning. People who view the world this way have overlooked one basic fact: the limitations of human understanding. What you know of the world you inhabit is only the tip of the iceberg. Submerged beneath the surface of the visible world are mysteries too vast for you to comprehend. If you could only see how close I am to you and how constantly I work on your behalf, you would never again doubt that I am wonderfully caring for you. This is why you must live by faith, not by sight; trusting in My mysterious, majestic Presence.

ROMANS 8:28 (AMP); JOB 42:1-3
1 PETER 5:7; 2 CORINTHIANS 5:7

…we are never alone…

………hugmamma.

(Enjoy other inspirational writings at
https://beccagivens.wordpress.com/2015/01/22/nurturing-thurs-let-it-go/ 

a little of this…a little of that…

Haven’t shared trivia with you in sometime. Thought you might be interested in the following regurgitated facts from experts in the field.

…from www.fsis.usda.gov: I was surprised to learn that what I thought would cause food poisoning insofar as perishable items are concerned, was incorrect. Mayonnaise may not be the culprit, but protein sources might. 

best egg salad sandwich ever, flying star, Alb...

Image via Wikipedia

Can mayonnaise in egg salad make you sick when it’s warm out? Karen ( the virtual food safety rep) says people often think mayo is the cause of foodborne illness from chilled foods such as chicken, tuna and egg salad or on deli-styled sandwiches. But since mayonnaise is made with acid (vinegar or lemon juice), it tends to prevent bacterial growth. Usually it’s the meat, poultry, fish or eggs in a sandwich left unrefrigerated for more than two hours that becomes the medium for bacteria to grow.

What about leftover fried chicken? According to Karen, food left out of the fridge for more than two hours may not be safe to eat. At temperatures above 90 F, food shouldn’t be left out for more than an hour. If you have any doubts, throw it out.

When you’ll be in the great outdoors and a cooler chest isn’t an option, Karen suggests packing such items as fruits, vegetables, hard cheeses, dried meats, dried cereal, bread, peanut butter, crackers and bottled drinks. 

…from Jackie Keller (nutrition expert/licensed and certified wellness coach: Debunks popular myths.

My Weight Loss Coach

Image via Wikipedia

Myth: Detox diets jump-start weight loss. I advise against detox diets, as they can cause the body to go into starvation mode and slow down the metabolism. If you want to cleanse your body, eliminate bad-for-you, processed foods and replace them with nutrient-dense foods.

Myth: Cutting carbs will help the pounds come off. The weight loss that low-carb dieters achieve in the first two weeks of carbohhydrate deprivation is measurable and not surprising. Carb-cutting will cause the body to shed water weight, as carbohydrates are stored in the body with water. That water weight will come right back on, and such a yo-yo weight loss is counterproductive and bad for overall metabolism.

Myth: Fat is the enemy. Research shows that monounsaturated and polyunsaturated fats–which are found in foods such as fish, olive oil, avocados and walnuts–can actually improve levels of good cholesterol (HDL) and reduce the risk of heart disease. These healthy fats can aid in weight loss and even delay hunger pangs when consumed in appropriate amounts.

…from David Horowitz (leading consumer advocate) @ www.fightback.com: Warns against scams. In my February 27, 2011 post, “ever have one of those years…?” I talked about the first one. So trust me! It can happen to you.

McAfee
Image by biggraham via Flickr

A message flashes on your computer screen: “Warning! Your system requires immediate anti-virus scan.” A free scan is offered. What do you do?
This incredibly common scam is almost guaranteed to occur as you use your PC. Upon first look, it would appear that clicking “No thanks” would be the right solution. Wrong. Clicking anywhere in the on-screen alert can open the program further or direct you to a website you have no interest in going to. Worse, clicking anywhere in the on-screen alert can instantly infect your computer with a virus that can be difficult or even impossible to remove. (It cost me $199 to have Tech Pros remove it.)

The solution is to hold down the Control and Alt keys and hit “Delete.” Once the application tab pops up, select “End Task,” then do a full scan of your computer with the anti-virus software you already have. (That’s exactly what the expert at Tech Pros told me…after I paid the $199.)

You are in financial trouble, and as a result your credit is suffering. You have been approached by a variety of services offering to repair your credit. What do you do?
Although many companies offer to repair damaged credit, it can be difficult to tell which are legitimate. The most common scam involves a company advising you to stop paying your creditors and deposit money into a special account instead. In reality, the debt-settlement company withdraws fees from your account for “services,” long before it negotiates with your creditors, if it negotiates at all.

If these companies send you an unsolicited email or advertise on the radio touting a stellar track record, it may be a scam. Stick with a legitimate nonprofit counseling outlet with an established track record, and always try to negotiate directly with your creditors first.

Ebay Explained 2006 (KLCC)

Image by liewcf via Flickr

You have made an online purchase and the item never arrives, or the item is not what you thought you were buying. What do you do? 
If you made the purchase from a reliable company, review the return policy and keep all receipts once you ship the items back. …However, if you made the purchase through a third-party entity on a website such as craigslist or eBay, the solution can be  bit more complicated.

Eiko's credit card

Image by eikootje via Flickr

Look for telltale signs of a scam before charging your credit card. For example, buying tickets can be risky, as scammers often change one digit in the theater address or the ticket number, tricking you into buying tickets you think are real, only to be told they are fake once you try to enter an event.

Beware of merchants who provide you with only a cellphone number; they do this because cellphones can’t always be tracked. Look out for sellers who ask you to wire money, retail websites that don’t list an address or a phone number, and companies that don’t have much of a presence or any reviews online. These likely are scams.

…more than enough…to contemplate…hugmamma.