living her best life: #57…pat’s new normal

Just the other day someone asked how my sister-in-law Pat was doing after her recent stem cell transplant at the Mayo Clinic in Minnesota. It reminded me that I’d not posted about her ongoing battle with multiple myeloma and amyloidosis in some time.

Not a day goes by that I don’t think about her, it’s just that I’d not been posting anything in quite some time. When I sit down at my laptop for any extended period, I tend to lose track of time and forget about everything else. In deciding to see to other areas of my life, I’ve resisted my passion…to just write.

Pat is doing well. She’s not perfect, but she’s on track…feeling healthy and looking forward to what each day brings. She’s returned to work. Yes! She’s back at work. She’s eating as best she can, given that her molars were extracted. From a photo she texted me a week or so ago, Pat’s smiling broadly. And best of all, her sense of humor is still intact.

When I asked if she wanted to reflect upon her time in Minnesota, Pat replied…

I haven’t really reflected yet on everything I went through at Mayo. Part of me doesn’t want to relive it and the other part thinks “Oh. That’s old news. I’m looking more toward the future…the uncertainty of it is a little scary so it’s still a challenge. I’m thinking of going back to work next month…I wish I could just retire and know that everything will be fine. On the other hand work keeps my mind sharp and occupied.

A week later, she wrote…

We are all doing good here…keeping an eye on the approaching hurricane. I’m feeling stronger every day and am planning to go back to work on Tuesday. I figured out the best time of day to take my meds to optimize how I feel during the day. I just have to remember to be careful in crowds and stay away from sick people. I’m back to “I don’t feel sick” which is good, but I have to remind myself that I’m not in the clear yet.

What’s next for Pat? 

As I understand it, she’s looking forward to the 100th day-post-stem cell transplant…and what it brings. She won’t need to return to the Mayo Clinic, instead she will meet with her own physician in Hawaii. Meanwhile she will be on one medication til then, and at least two others for the next year.

Once she left Rochester and the Mayo Clinic back in August, Pat and Brad spent a few days in Duluth, Minnesota, before heading to Minneapolis where they caught their flight home.

We are enjoying ourselves in Duluth right now. From our room we can watch huge ships roll in night and day…it’s pretty amazing. Lake Superior is pretty cool too. If I didn’t know better I’d think it was the Atlantic Ocean. Being here is therapeutic, nice bright room, lots of sunshine and a body of water that reminds us of home. We’re staying one extra day here.

We are in Minneapolis now…big city…long gone are the fields and fields of corn. Duluth was very therapeutic and I’m glad we went there. Now that we’re in the city we have the opportunity to go to concerts or shows but I don’t think I’m up for that. Theaters and shopping are close by and we are near Target Center (basketball arena?) and where the new stadium for the Vikings is being built. Neither team has anything going on…thought we would catch a ball game or football training camp practice. Well I’m really ready to go home…the sisters and my mom-in-law are going over on Saturday to clean. Julie’s also going to clean out my fridge and do a little shopping for me. I also asked if Dennis could make some pork with squash…yes, my appetite is back full force but my tongue is still swollen so sticking with soft foods and lots of soups.

So “How’s Pat doing?” Well, she could be better. She’d probably prefer it if she could revert back to her old normal. Yet that’s not how my sister-in-law operates. Pat pretty much goes with what’s on her plate. She’s acclimating to what’s been dished up without a whole lot of whining and complaining. It could be her island mentality…her Catholic upbringing…being the youngest of twelve..the mother of two teenage boys…or having awesome parents as role models. It’s more likely a combination of all these factors.

All I know is Pat’s become my role model.

Life is about change, good or bad. Better to accept that as fact and work with what we’re dealt at any given time. None of us can go back to the old normal. It’s always being tweaked…by us or by fate. We can make life good…or we can make life hell. It’s up to us.

I count myself lucky to have someone in my life to show me how it’s done.

…thanks, pat.

………hugmamma.

in loving memory…of lives lived…not lost…

 

Life…and death…have a way of slowing down the rat race.

When we seem certain that the nuts and bolts in our daily lives are running smoothly, the machinery in our little world…our microcosm…chugging along quite nicely, producing the results we’d hoped for, striven for…fate intervenes, upending our…house of cards.

I spent a few moments this morning perusing the most recent posts written by friend and fellow blogger, Christine at http://randomthoughtsfrommidlife.wordpress.com

Français : couverture du livre La maladie d'Al...

Français : couverture du livre La maladie d’Alzheimer – Accompagnez votre proche au quotidien (Photo credit: Wikipedia)

My original connection with her was that her dad was suffering from Alzheimer’s. You see…my mom also suffered its debilitating effects before finally succumbing a number of years ago.

As a result, I was on the path to doing what I could to deter or slow the progression of that dreadful disease…in myself.

Sadly, Christine recently lost…both parents.

Her mother was unexpectedly diagnosed with cancer, not too long before she died. Christine’s dad followed soon after.

A few years ago, before I began following Christine’s blog, she suffered the loss of a beloved sister who had been retarded.

I’ve admired Christine’s strength throughout the turmoil she endured caring for her parents. And the love she shared with them…and the sister who had gone before.

Christine’s compelling story was like…a dip in the icy cold glacial waters off the coast of Alaska.

When we think life is so unfair…it seems best to remember the advantages we do enjoy.

I’ve been given a chance to live…

…to love…and be loved…

…to explore my talents…and forgive my weaknesses…

…to know others…and have them know me…

…to see with my eyes…the beauty of all I see…

…to hear with my ears…the sounds of life beckoning me forward…

…to sample with my own taste buds…all the gastronomical delights that others create…and the humble offerings that emanate from my own two hands…

…to walk and jump and climb and crawl and wriggle and stretch.

Above all…

I can think and remember and express and give voice and cry and laugh and complain and argue and be thankful…

…and I can pray…

…for myself and for others…

LIFE AFFORDS ME ALL THIS…

AND SO MUCH MORE.

Death cannot take away all the life that I have lived thus far.

Only I can do that…if I fail to crowd every nook and cranny of my life with the sights, sounds, smells…and all the amazing moments that present themselves.

Christine’s story reminded me to…enjoy the ride of a lifetime…

…every single moment…of every single day!!! croppedphoto