living her best life…#37: wabi sabi

Wabi Sabi. A phrase I’ve now heard 3 times within the last couple of months. A phrase I’d never heard before.

Pat’s husband Brad first mentioned Wabi Sabi just about the time she was diagnosed with multiple myeloma and amyloidosis. Then Pat’s sister Mary spoke of it again in an email. I’d been meaning to bring it up in a post, but never did. And so…the “third time’s the charm.”

A Blog for Humans at   https://tomrains.wordpress.com/2015/02/19/sehnsucht/  defined Wabi Sabi as “a Japanese philosophy concerning the beauty of imperfection.”

The beauty of imperfection. 

Describes Pat’s life at the moment…at least insofar as how Pat is living her life…in light of her health issues.

Life really is as the Japanese perceive it…Wabi Sabi. 

Beautiful in its imperfection.

Following is an email from Pat updating her “imperfectly beautiful life.”

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Hi [hugmamma…]

How is Sitka doing? I felt so sad reading your post about him. It was really hard when Lady died. It took a while but I’m finally ready for another dog, but the timing is just not right. And how is the renovation going? Smoothly, I hope! I’m not sure if my text messages from my phone are going through, so wanted to give you another update, as things are starting to move forward…

First things first, though. Had an enjoyable, busy weekend. Saturday was a bridal shower for John’s (my nephew) fiancee, Estee. Then we got together on Sunday at Johnny’s (my brother) because Carol and her family are in town for the week. Any time family’s together is a good time…

I’m still working 3 days a week and will start doing half days on most Thursdays. Basically, I’m running out of sick leave and vacation time! There’s a “shared leave” program at work where co-workers can donate leave. My boss says there’s a lot of interest from people at work who want to donate, so I’ve put in a request and hopefully will get some additional time. I’ve also put in for leave without pay for June – August. I will be able to keep my medical benefits as long as I pay my premiums, so I wanted to make sure to set that up.

We just got a letter from the Mayo Clinic scheduling my first appointment for May 11. Chemo is scheduled to end Wednesday, May 6, so the following Monday we’ll be in Minnesota. The Kaiser transplant coordinator told us Mayo said to plan on staying for 2-3 days. That doesn’t help us much so we are trying to get more details before we make our travel arrangements. I have 2 appointments the first day we’re there which look like a consultation and possibly a bone marrow biopsy. Kaiser has said all along that the Mayo Clinic will most likely want to do their own tests, etc. So there could be additional appointments while we’re there.

Brad and I still have so many questions, as well as a lot of preparation for the trip and beyond. 

Ethan will still be in school. Need to make arrangements for him to stay with Brad’s sister. Aiden is due to return home on May 10, so we’ll be crossing paths in the air. What’s unknown is how soon after this first trip we’ll be returning to the Mayo Clinic for the actual transplant. We’ve learned that they won’t want to wait too long from the time I end my chemotherapy before starting the transplant process. So we’re guessing we’ll fly home only to fly back soon after. Not so easy when traveling from Hawaii!

It’s still a little ways away, but I get anxious if I think about it too much. Just have to take it one day at a time, because…

…life goes on…things needing to be done this week…a meeting with our tax consultant…chemo treatments…

…and things to look forward to…John and Estee’s wedding in a couple of weeks…the annual Easter brunch at our house.

Maybe we can talk on Wednesday or Thursday morning? Chemo on Wednesday is at 1 p.m. 

Anyway, must be going. Trying to gather all our tax papers for tomorrow’s meeting.

Love to you and the family,

…and all my supporters…

…pat…and hugmamma.

 

caring friends

The company of dancers to which my daughter belongs, are an especially caring group of young folk. People unfamiliar with their world might conclude that its competitive environment would prohibit close friendships. As with any career, there are individuals who refuse to look beyond their wants and needs. But having witnessed my daughter’s experiences first hand, I know that most dancers reach out to one another, offering a shoulder or a pat on the back, as the situation warrants.

Dancers work under demanding physical conditions. Their minds are also constantly challenged with learning choreography for several pieces simultaneously. Add to the mix, their ongoing concern for keeping healthy and fit. Their jobs depend upon their doing so. And yes, there is some anxiety about what roles they will get to dance. While they can hone their skills to achieve their personal best, the artistic staff, and sometimes the choreographer, have their own selection criteria. The dancers must abide by their decisions.

Unlike many professions, dancers must be passionate about their choice of a career. Given the unique demands and stresses, someone doing it half-heartedly could not withstand the physical pain nor the extraordinary mental stimulation. (Although some have tried, and still try.) Dancers rarely take sick leave, that’s how “crazy” they are about what they do. (I have to admit to taking mental health days once in a while during my stint at a career outside the home. Actually, I still do.) Working as a team to bring a ballet or contemporary piece to the stage, the dancers support each other’s efforts. For the good of all, they forge close relationships based upon respect. They celebrate together, and they share disappointment together.

Making big bucks is never a consideration for dancers. Unless they are with major metropolitan companies with $15 million budgets, dancers barely make a living wage. Many work 2 jobs to support themselves. Again, that’s how “crazy” they are about what they’re doing. Occasionally they may dine out on shared appetizers and desserts. Or they may splurge at a sushi joint or a local, college hangout. Most times they relax at one another’s apartments, having already eaten their meals at home. There are group celebrations for birthdays or Christmas, where everyone brings pot luck. They are as generous as they are frugal. That is to say, they spend within their means.

I admire my daughter and her dance friends. They are passionate about their careers, while showing compassion towards each other. They have showmanship, but are not flashy. Each believes he or she is the best, but realize there’s better, when they see it in another dancer. They congratulate each other when great roles are garnered, and they cry together when they are not. Their hearts are big; they pet-sit for free when friends are away for a few days or a few weeks. They transport each other to and from the airport, even during  rush hour traffic.

My daughter has a family of caring friends, and we, her family, cannot express enough appreciation for those young men and women. They are the siblings she did not have growing up.

those who care for our children as we do, deserve our thanks…hugmamma.