living her best life…#37: wabi sabi

Wabi Sabi. A phrase I’ve now heard 3 times within the last couple of months. A phrase I’d never heard before.

Pat’s husband Brad first mentioned Wabi Sabi just about the time she was diagnosed with multiple myeloma and amyloidosis. Then Pat’s sister Mary spoke of it again in an email. I’d been meaning to bring it up in a post, but never did. And so…the “third time’s the charm.”

A Blog for Humans at   https://tomrains.wordpress.com/2015/02/19/sehnsucht/  defined Wabi Sabi as “a Japanese philosophy concerning the beauty of imperfection.”

The beauty of imperfection. 

Describes Pat’s life at the moment…at least insofar as how Pat is living her life…in light of her health issues.

Life really is as the Japanese perceive it…Wabi Sabi. 

Beautiful in its imperfection.

Following is an email from Pat updating her “imperfectly beautiful life.”

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Hi [hugmamma…]

How is Sitka doing? I felt so sad reading your post about him. It was really hard when Lady died. It took a while but I’m finally ready for another dog, but the timing is just not right. And how is the renovation going? Smoothly, I hope! I’m not sure if my text messages from my phone are going through, so wanted to give you another update, as things are starting to move forward…

First things first, though. Had an enjoyable, busy weekend. Saturday was a bridal shower for John’s (my nephew) fiancee, Estee. Then we got together on Sunday at Johnny’s (my brother) because Carol and her family are in town for the week. Any time family’s together is a good time…

I’m still working 3 days a week and will start doing half days on most Thursdays. Basically, I’m running out of sick leave and vacation time! There’s a “shared leave” program at work where co-workers can donate leave. My boss says there’s a lot of interest from people at work who want to donate, so I’ve put in a request and hopefully will get some additional time. I’ve also put in for leave without pay for June – August. I will be able to keep my medical benefits as long as I pay my premiums, so I wanted to make sure to set that up.

We just got a letter from the Mayo Clinic scheduling my first appointment for May 11. Chemo is scheduled to end Wednesday, May 6, so the following Monday we’ll be in Minnesota. The Kaiser transplant coordinator told us Mayo said to plan on staying for 2-3 days. That doesn’t help us much so we are trying to get more details before we make our travel arrangements. I have 2 appointments the first day we’re there which look like a consultation and possibly a bone marrow biopsy. Kaiser has said all along that the Mayo Clinic will most likely want to do their own tests, etc. So there could be additional appointments while we’re there.

Brad and I still have so many questions, as well as a lot of preparation for the trip and beyond. 

Ethan will still be in school. Need to make arrangements for him to stay with Brad’s sister. Aiden is due to return home on May 10, so we’ll be crossing paths in the air. What’s unknown is how soon after this first trip we’ll be returning to the Mayo Clinic for the actual transplant. We’ve learned that they won’t want to wait too long from the time I end my chemotherapy before starting the transplant process. So we’re guessing we’ll fly home only to fly back soon after. Not so easy when traveling from Hawaii!

It’s still a little ways away, but I get anxious if I think about it too much. Just have to take it one day at a time, because…

…life goes on…things needing to be done this week…a meeting with our tax consultant…chemo treatments…

…and things to look forward to…John and Estee’s wedding in a couple of weeks…the annual Easter brunch at our house.

Maybe we can talk on Wednesday or Thursday morning? Chemo on Wednesday is at 1 p.m. 

Anyway, must be going. Trying to gather all our tax papers for tomorrow’s meeting.

Love to you and the family,

…and all my supporters…

…pat…and hugmamma.

 

6 thoughts on “living her best life…#37: wabi sabi

  1. Hi, Hugmamma. I just wanted to let you know, I nominated you for the TOUR THROUGH BLOGLAND award. The information for it is on my blog. You don’t have to answer a lot of questions like some awards, just do some writing. should you choose to accept. 🙂 — Suzanne

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    • You are such a dear friend, Suzanne. I will take a look and do what I can. I am just returning from almost a month with our daughter. She was recovering from two surgeries…the second to repair her bowel wall which had been pierced during the first surgery. A scare for us to be sure. Thankfully, she is on her way back to her life…before it was so rudely interrupted. hugs…

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hugs for sharing some brief thoughts...and keeping them positive